Saving Sarah Hardback

Sarah had been dying of cystic fibrosis since the day she was born.

The disease quickly ravaged her lungs and little body bit-by-bit.

Fragile and frail, she had only weeks to live, when her mum realised the reality of Sarah's situation: transplant laws, restricting access to lungs based on arbitrary age restrictions, meant Sarah's options were limited.

The injustice of her daughter's fate spurred Janet to start a public battle against outdated health care regulations and a battle to save Sarah's life. Janet transformed her pain and desperation into a voice for Sarah and other kids using social media as her megaphone with friends and family as Sarah's warriors.

How does a family navigate catastrophic illness and life in a hospital, while still maintaining a sense of normalcy?

Saving Sarah is a story of hope and courage, and a mother's determination to never give up.

It's also the story of how a family - Janet and her husband Fran have three other children, one adopted from Ghana - reacts and adjusts when one of its members is in ongoing crisis.